The Voice of the Expert and that of the Patient in the Narrative of a Pandemic: The Discursive Construction of Long COVID
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Abstract
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This paper aims to explore the role of personal narratives of long COVID patients within the discursive landscape of the media and social networks. The study is based on a flexible notion of personal narrative, understood as a diffuse and scalar modality (Page) and as a social practice, i.e. as a social activity within a given context, in which different relations of power and ideology converge (De Fina). After defining the features of journalistic news on Facebook, using a socio-cognitive approach to discursive genres (Bhatia; Carranza 2012; Hanks), I will analyse some news about long COVID and the different narrative accounts introduced by both journalists and participants in the virtual communities. Among the results, we will highlight the prominence of the personal narrative in the social debate around health and in the discursive construction of a new disease (Bañón Hernández).
Keywords
References
Álvarez-Mon, Miguel Á., Alberto Rodríguez-Quiroga, Laura de Anta y Javier Quintero. "Aplicaciones médicas de las redes sociales. Aspectos específicos de la pandemia de la COVID-19". Medicine 13.23 (2020): 1305-10. https://doi.org/10.1016/j.med.2020.12.012
Aronson, Jeffery. "Autopathography: The Patient's Tale". British Medical Journal 321 (2000): 1599-602. https://doi.org/10.1136/bmj.321.7276.1599
Bañón Hernández, Antonio. Discurso y salud. Análisis de un debate social. Pamplona: EUNSA, 2018.
Bañón Hernández, Antonio, y Carolina Figueras Bates, eds. Análisis crítico y patologías médicas. Número monográfico de Oralia 20 (2017).
Bhatia, Vijay. "Critical Genre Analysis: Theoretical Preliminaries". Hermes. Journal of Language and Communication in Business 54 (2015): 9-20. https://doi.org/10.7146/hjlcb.v27i54.22944
Bruce, Ian. "Evolving Genres in Online Domains: The Hybrid Genre of the Participatory News Article". Genres on the Web: Computational Models and Empirical Studies. Eds. Alexander Mehler, Serge Sharoff y Marina Santini. Dordrecht: Springer, 2010. 323-48. https://doi.org/10.1007/978-90-481-9178-9_15
Bruner, Jerome. Acts of Meaning: Four Lectures on Mind and Culture. The Jerusalem- Harvard Lectures, Cambridge MA: Harvard UP, 1990.
Brüssow, Harald, y Kenneth Timmis. "COVID-19: long covid and its societal consequences". Environmental Microbiology (2021). 30 de junio de 2021. <https://sfamjournals.onlinelibrary.wiley.com/doi/10.1111/1462-2920.15634>.
Caffi, Claudia, y Richard W. Janney. "Toward a pragmatics of emotive communication". Journal of Pragmatics 22.3-4 (1994): 325-73. https://doi.org/10.1016/0378-2166(94)90115-5
Calvi, Maria Vittoria. "Narrazione e identità discorsive nei forum di medicina". La comunicazione specialistica: Aspetti linguistici, culturali e sociali. Eds.
Maria Vittoria Calvi, Beatriz Hernán-Gómez Prieto y Giovanna Mapelli. Milano: FrancoAngeli, 2017. 15-37.
Carranza, Isolda E. "Low-narrativity narratives and argumentation". Narrative inquiry 8.2 (1998): 287-317. https://doi.org/10.1075/ni.8.2.04car
Carranza, Isolda E. "Los géneros en la vida social: la perspectiva fundada en las prácticas sociales". Los géneros discursivos desde múltiples perspectivas: Teorías y análisis. Eds. Marta Shiro, Patrick Charaudeau y Luisa Granato. Madrid/Fráncfort: Iberoamericana/Vervuert, 2012. 99-122. https://doi.org/10.31819/9783954870653-006
Casado Velarde, Manuel. "Algunas estrategias discursivas en el lenguaje periodístico de hoy". Boletín Hispánico Helvético (BHH) 12 (2008): 71-97.
Cordella, Marisa. "La interacción médico-paciente en escrutinio: un estudio de sociolingüística interaccional". Onomázein 7 (2002): 117-44. https://doi.org/10.7764/onomazein.7.07
Cosmacini, Giorgio. Medicina narrata. Viddalba: Sedizioni Diego Dejaco Editore, 2015.
Cresswell, Tim. "Valuing mobility in a post COVID-19 world". Mobilities 16.1 (2021): 51-65. https://doi.org/10.1080/17450101.2020.1863550
Davies, Bronwyn, y Ron Harré. "Positioning: The Social Construction of Selves". Journal for the Theory of Social Behavior 20 (1990): 43-63. https://doi.org/10.1111/j.1468-5914.1990.tb00174.x
De Cesare, Francesca. "La representación de los actores sociales en los discursos del coronavirus en la prensa española". Argumentación y persuasión. Los discursos en lengua española. Ed. Francesca de Cesare. Nápoles: Paolo Loffredo, 2021. 97-117.
De Fina, Anna. "Doing narrative analysis from a narratives-as-practices perspective". Narrative Inquiry 31.1 (2020): 49-71. https://doi.org/10.1075/ni.20067.def
De Fina, Anna, y Alexandra Georgakopoulou. Analyzing narrative. Discourse and sociolinguistic perspectives. Cambridge: Cambridge University Press, 2012. https://doi.org/10.1017/CBO9781139051255
Duffy, Margaret E., y Esther Thorson. "Emerging Trends in the New Media Landscape". Health Communication in the New Media Landscape. Eds. Jerry C. Parker y Esther Thorson. New York: Springer, 2009. 93-116.
Entman, Robert M. "Framing: Toward Clarification of a Fractured Paradigm". Journal of Communication 43.4 (1993): 51-8. https://doi.org/10.1111/j.1460-2466.1993.tb01304.x
Figueras Bates, Carolina. "Empathy in online mental health communities". Stance, Inter/Subjectivity and Identity in Discourse. Eds. Juana I. Marín- Arrese, Laura Hidalgo-Downing y Juan Rafael Zamorano-Mansilla. Bern: Peter Lang. En prensa.
Fuentes Rodríguez, Catalina. "Los comentarios en la prensa digital". Imagen social y medios de comunicación. Ed. Catalina Fuentes Rodríguez. Madrid: Arco Libros, 2013. 199-247.
García Serrano, Jesús, Luis M. Romero-Rodríguez y Ángel Hernando Gómez. "Análisis del clickbaiting en los titulares de la prensa española contemporánea. Estudio de caso: diario El País en Facebook". Estudios sobre el Mensaje Periodístico 25.1 (2019): 197-212. https://doi.org/10.5209/ESMP.63724
Giddens, Anthony. Central Problems in Social Theory: Action, Structure, and Contradiction in Social Analysis. Berkeley: University of California Press, 1979. https://doi.org/10.1007/978-1-349-16161-4
González Manzanero, Remei. "Los comentarios digitales de los usuarios en los periódicos en línea: análisis de la coherencia y la interactividad". Círculo de Lingüística Aplicada a la Comunicación (CLAC) 83 (2020): 77-92. https://doi.org/10.5209/clac.70565
Good, Byron J. Medicine, Rationality, and Experience: an Anthropological Perspective. Cambridge: Cambridge University Press, 1994.
Gygax, Franziska, y Miriam A. Locher. "Introduction". Narrative Matters in Medical Contexts across Disciplines. Amsterdam: John Benjamins, 2015. 1-14. https://doi.org/10.1075/sin.20.01gyg
Hanks, William F. "Discourse genres in a theory of practice". American Ethnologist 14.4 (1987): 668-92. https://doi.org/10.1525/ae.1987.14.4.02a00050
Heras Pedrosa, Carlos de las, Pablo Sánchez-Núñez y José Ignacio Peláez. "Sentiment Analysis and Emotion Understanding during the COVID-19 Pandemic in Spain and Its Impact on Digital Ecosystems". International Journal of Environmental Research and Public Health 17.5542 (2020). 31 de mayo de 2021. <https://www.researchgate.net/publication/343394640>. https://doi.org/10.3390/ijerph17155542
Hofmann, Bjørn. "On the Triad Disease, Illness and Sickness". Journal of Medicine and Philosophy 27.6 (2002): 651-73. https://doi.org/10.1076/jmep.27.6.651.13793
Kaplan, Nora. "Nuevos desarrollos en el estudio de la evaluación en el lenguaje: la teoría de la valoración". Boletín de Lingüística 22 (2004): 52-78.
Kelly, Michael. "Languages and the coronavirus crisis". European Journal of Language Policy 12.2 (2020): 257-70. https://doi.org/10.3828/ejlp.2020.13
Labov, William. "Some further steps in narrative analysis". Journal of Narrative and Life History 7.1-4 (1997): 395-415. https://doi.org/10.1075/jnlh.7.49som
Mancera Rueda, Ana. "El discurso referido en teletipos y noticias de la prensa española". Círculo de Lingüística Aplicada a la Comunicación (CLAC) 40 (2009): 33-61.
Mancera Rueda, Ana, y Ana Pano Alamán, eds. La opinión pública en la red: Análisis pragmático de la voz de los ciudadanos. Madrid/Fráncfort: Iberoamericana/ Vervuert, 2020. https://doi.org/10.31819/9783968690766
Mapelli, Giovanna. "La comunicación (e)-médico/(e)-paciente en los foros de salud". Discurso médico. Reflexiones lingüísticas, históricas y lexicográficas. Eds. Luisa Chierichetti y Giovanna Mapelli. Bergamo: CELSB, 2015. 131-50.
Mariottini, Laura, y María Isabel Hernández Toribio. "La narración de experiencias en TripAdvisor". RILCE 33.1 (2017): 302-30. https://doi.org/10.15581/008.33.1.302-30
Martín, James R., y Peter R. R. White. The Language of Evaluation: Appraisal in English. Basingstoke: Palgrave Macmillan.
Méndez García de Paredes, Elena. "La literalidad de la cita en los textos periodísticos". Revista Española de Lingüística 30.1 (2000): 147-67.
Milluzzo, Sara. "Imagen y poder en la comunicación médico-paciente en los foros de medicina". Discurso médico. Reflexiones lingüísticas, históricas y lexicográficas. Eds. Luisa Chierichetti y Giovanna Mapelli. Bergamo: CELSB, 2015. 151-84.
Mora Rodríguez, Alberto, e Inmaculada Melero López. "Seguimiento informativo y percepción del riesgo ante la Covid-19 en España". Comunicar 66 (2021): 71-81. https://doi.org/10.3916/C66-2021-06
Nespereira García, Javier. "Los discursos de la pandemia. Nuevas estrategias de comunicación del riesgo en un nuevo contexto sociocultural". Cultura, Lenguaje y Representación 13 (2014): 185-99. https://doi.org/10.6035/CLR.2014.13.10
Page, Ruth. Narratives Online: Shared Stories on Social Media. Cambridge: Cambridge UP, 2018. https://doi.org/10.1017/9781316492390
Paredes García, Florentino, y Pedro Sánchez-Prieto Borja. "Lengua y discurso en torno a la COVID-19". RIECS 6.1 (2021): 91-110. https://doi.org/10.37536/RIECS.2021.6.1.262
Parker, Jerry C., y Esther Thorson, eds. Health Communication in the New Media Landscape. New York: Springer, 2009.
Penas Ibáñez, M.ª Azucena. "Discurso científico y falsas noticias en Internet". Análisis del discurso y registros del habla. Eds. Luis Alberto Hernando Cuadrado y Mª Azucena Peñas Ibáñez. Madrid/Fráncfort: Iberoamericana/Vervuert, 2020. 195-220. https://doi.org/10.31819/9783968690667-009
Petracci, Mónica, y Milca Cuberli. "eHealth y pandemia Covid-19: nuevos tiempos para las relaciones entre médicos y pacientes". Chasqui. Revista Latinoamericana de Comunicación 145 (diciembre 2020-marzo 2021): 281-98. https://doi.org/10.16921/chasqui.v1i145.4362
Prandi Lorenzo, y Giuseppe Primiero G. "Effects of misinformation diffusion during a pandemic". Applied Network Science 5.82 (2020). 31 de mayo de 2021. https://doi.org/10.1007/s41109-020-00327-6
Rando Cueto, Dolores, Carlos de las Heras Pedrosa y Francisco Javier Paniagua Rojano. "The influence of social networks on the work of information professionals specializing in health. The Case of Spanish Official Medical Associations". Revista Latina de Comunicación Social RLCS 79 (2021): 113-33. https://doi.org/10.4185/RLCS-2021-1491
Rebolledo, Marta, Hildegart González e Inés Olza. "Visibilidad de los sanitarios durante la crisis del Covid-19: estudio de fuentes y temáticas en los informativos de televisión". Interface. Comunicação, Saúde, Educação 25.l (2021): e200606. 12 de febrero de 2022. https://doi.org/10.1590/interface.200606
Ricoeur, Paul. Soi-même comme un autre. Paris: Éditions du Seuil, 1990.
Sacks, Harvey. Lectures on Conversation. Oxford: Blackwell, 1995. https://doi.org/10.1002/9781444328301
Wynn, James. Citizen Science in the Digital Age: Rhetoric, Science, and Public Engagement. Tuscaloosa: University of Alabama Press, 2017.
Zummo, Marianna Lya. "Exploring web-mediated communication: A genrebased linguistic study for new patterns of doctor-patient interaction in online environment". Communication & Medicine 12.2-3 (2015): 187-98. https://doi.org/10.1558/cam.31897
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